PNRI Science: Rare Disease, Real Progress
We’re back with Season 2 of our podcast PNRI Science–this time recorded live at PNRI’s 2025 Rare Disease Day symposium. It was a day full of energy, insight, and shared purpose, as scientists, clinicians, advocates, and industry leaders came together to accelerate rare disease research and treatment.
Hosted by Jack Faris, CEO of the Pacific Northwest Research Institute, and his daughter, actor and producer Anna Faris, this season captures personal stories and fresh perspectives from across the rare disease landscape. You’ll hear from rare disease families, early-career scientists, seasoned clinicians, and corporate partners, all reflecting on what drives their work—and what’s possible when people from different sectors come together.
Because in rare disease, a diagnosis isn’t the end of the story. It’s the start of something powerful.
Hosts:
Jack Faris, PhD
PNRI CEO
Anna Faris
Actor/Producer
Episode 1: Two Institutions, One Powerful Event
May 5, 2025
Episode 1 of PNRI Science: Rare Disease, Real Progress opens with a behind-the-scenes look at the 2025 Rare Disease Day Symposium, featuring a conversation between two of the event’s key organizers: PNRI CEO Dr. Jack Faris and Seattle Children’s Research Institute Chief Scientific Officer Dr. Vittorio Gallo. Together, they reflect on the collaborations that made the event possible, the breakthroughs shared on stage, and why partnership is essential to accelerating rare disease research.